Rare Disease
About one in 10 people in the United States lives with a rare disease, defined as a condition that impacts fewer than 200,000 people. Rare diseases related to the eye, often those that are disruptive and debilitating, account for a significant number of rare conditions.
Social Media Toolkit
Use the suggested social media posts and images below to raise awareness on social media.
- #RareDiseaseDay is a reminder that awareness drives action – and action drives change. Addressing the unmet needs of the rare vision community begins with increasing awareness: Rare Disease Day – Vision Health Advocacy
- About 1 in 10 people in the U.S live with a rare disease – many of which affect the eyes. Raising awareness is the first step to addressing unmet needs. Learn more about rare vision diseases today: Rare Disease Day – Vision Health Advocacy
- #ThyroidEyeDisease is a rare autoimmune condition that when left untreated, or misdiagnosed, may cause permanent damage to the eye. Learn more about #TED on #RareDiseaseDay! Rare Disease Day – Vision Health Advocacy
- #ThyroidEyeDisease is a rare autoimmune condition impacting the eyes. On #RareDiseaseDay, VHAC is working to dispel some of the myths and misinformation about TED. Learn more: Rare Disease Day – Vision Health Advocacy
- Innovation and treatment access for rare vision conditions are imperative to ensure patients have treatment options available to slow, or even prevent, irreversible vision damage. #RareDiseaseDay. Learn more: Rare Disease Day – Vision Health Advocacy
Learn About Rare Vision Conditions
Educational Materials

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How Clinical Trials Advance Vision Health

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Barriers to Genetic Testing & Counseling

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Rare Vision Conditions & Health Plan Barriers

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An Eye on Rare Vision: Keratoconus

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The Long Diagnostic Journey




















