Rare Disease

About one in 10 people in the United States lives with a rare disease, defined as a condition that impacts fewer than 200,000 people. Rare diseases related to the eye, often those that are disruptive and debilitating, account for a significant number of rare conditions.

Social Media Toolkit

Use the suggested social media posts and images below to raise awareness on social media.

DYK? Rare diseases related to the eye account for a significant number of rare conditions. Learn more with @visionadvocacy’s toolkit: https://visionhealthadvocacy.org/rare-disease
Retinitis pigmentosa is a group of inherited retinal diseases that involve a breakdown of cells in the eye that detect light, eventually leading to vision loss. Learn more: https://bit.ly/3XrE4QE
DYK? It typically takes more than five years for patients to receive a rare vision disease diagnosis: https://bit.ly/43WGyYN
Who is at risk of keratoconus? Learn here: https://bit.ly/3LrJMgJ
If left untreated or misdiagnosed, thyroid eye disease may cause permanent damage to the eye. Learn more: https://bit.ly/3LCh8t8